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Novo Nordisk is Changing Possibilities in Hemophilia
Friday, October 30, 2009 9:01 AM


Expanded Web Site and Facebook Wall Provide Resources to Hemophilia with Inhibitors Community

These new online resources were created to engage and connect people in the hemophilia inhibitor community, which comprises only 800 to 900 Americans, with one another and offer easy access to financial, educational and community support programs that may help them live more normal lives.

"Many families impacted by hemophilia with inhibitors struggle to find tools, resources and support," said Eddie Williams, Vice President of Biopharmaceuticals at Novo Nordisk. "Through changingpossibilities-us.com and the changing possibilities in hemophilia(TM) Facebook Page, Novo Nordisk hopes to provide members of the inhibitor community with a unique forum to share and learn from others' experiences."

Hemophilia is a chronic, inherited bleeding disorder that occurs because certain blood clotting factors are missing or do not work properly. Spontaneous internal bleeding can occur, especially in the joints and muscles. Inhibitors are a serious complication that can develop after treatment in as many as 30 percent of people with hemophilia, most commonly in young children. These patients develop antibodies (or inhibitors) that circulate in the blood stream and actually neutralize, or attack clotting replacements, resulting in an increased risk of bleeding, arthropathy (or joint disease), physical disability and death.

Visitors to the new changing possibilities in hemophilia(TM) Web site can become a member of The Changing Possibilities Coalition and by registering, a $25 donation will be made to a local camp that members of The Coalition will choose. The camps promote personal growth for young people with bleeding disorders. Visitors to the site can also become involved in programs like The Consumer Council, a group of patients and parents who founded The Coalition and work with Novo Nordisk to create materials that empower the inhibitor community.




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